For Beth Kephart’s son, the diagnosis was "pervasive developmental disorder not otherwise specified"—a broad spectrum of difficulties, including autistic features. As the author and her husband discover, all that label really means is that their son Jeremy is "different in a million wonderful ways, and also different in ways that need our help." In intimate, incandescent prose, Kephart shares the painful and inspiring experience of loving a child whose "special needs" bring tremendous frustration and incalculable rewards. "What, in the end, are you fighting for: Normal?" Kephart asks. "Is normal possible? Can it be defined? . . . And is normal superior to what the child inherently is, to what he aspires to, fights to become, every second of his day?" With the help of passionate parental involvement and the kindness of a few open hearts, Jeremy slowly emerges from a world of obsessive play rituals, atypical language constructions, endless pacing, and lonely frustrations. Triumphantly, he begins to engage others, describe his thoughts and passions, build essential friendships. Ultimately this is a story of the shallowness of medical labels compared to a child's courage and a mother's love, of which Kephart writes, "Nothing erodes it. It is not sand on a beach. It is the nuclear heart of things—hard as the rock of this earth."
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At a time when as many as one in five children face the challenge of growing up with a behavioral disorder, more and more parents are finding themselves at a loss to know how best to raise their children.
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"It’s so hard, this parenting project. Every kid is different, every parent is different, and the boxes we’re permitted so confining. Every difference diagnosed; every variation a treatment problem. And in spite of it all, parents do muddle through, and children do grow, unfold, become their own true selves, as we reach towards and finally to them—as Beth Kephart reaches toward Jeremy and Jeremy toward the world."
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Produktdetaljer

ISBN
9780393340983
Publisert
1998-06-17
Utgiver
Vendor
Ww Norton & Co
Høyde
203 mm
Bredde
127 mm
Aldersnivå
G, 01
Språk
Product language
Engelsk
Format
Product format
Heftet
Antall sider
256

Forfatter

Om bidragsyterne

Beth Kephart is the award-winning author of a memoir trilogy. She has written about writing and the imagination for the New York Times, the Washington Post, the Chicago Tribune, and Parenting. She lives in Devon, Pennsylvania.