“<i>Disability Worlds</i> is a remarkable book, and the world will be a better place for it. It is like nothing else in the disability studies canon. Faye Ginsburg and Rayna Rapp are already major figures in the field, standing for decades at the still-too-sparsely-trafficked crossroads of disability studies and anthropology, and this book will become a standard reference point.”

- Michael Bérubé, author of, Life as Jamie Knows It: An Exceptional Child Grows Up

“Having already forged disability studies and disability-inclusive practices within anthropology, Faye Ginsburg and Rayna Rapp author a powerful new theoretical framework for understanding the multiple institutional and cultural dynamics of ableism. Looking beyond the past, the book also evokes disability futures in beautifully rendered ethnographies of scholars, artists, and activists who are leading efforts at disability reworlding. I cannot imagine teaching my medical anthropology course again without <i>Disability Worlds</i>.”

- Carolyn M. Rouse, Professor of Anthropology, Princeton University,

"From disabled choreographers and filmmakers to access activists to scholars across a dizzying spread of fields, GInsburg and Rapp know everyone and have read everything. The thoroughness and generosity of their scholarship is breathtaking. I can imagine no better introduction to the anthropology of disability, disability studies, or the state of play in the quest for disability justice in New York and beyond."

- Danilyn Rutherford, Reviews in Anthropology

In Disability Worlds, Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rapp’s conversations with diverse New Yorkers reveal the bureaucratic constraints and paradoxes established in response to the disability rights movement, as well as the remarkable creativity of disabled people and their allies who are opening pathways into both disability justice and disability futures.
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Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars.
Acknowledgments  ix Introduction: Encountering Disability Worlds  1 1. The Doubled Telos of Modernity: Genetic Screening, Atypical Brains, and Neurodiversity  27 2. New Kinship Imaginaries and Their Limits  49 3. The Paradox of Recognition and the Social Production of Moxie  83 4. Transitioning to Nowhere?  120 5. Living Otherwise: Worlding Disability Arts  154 6. Disability Worlds / Disability Futures  187 Notes  221 Bibliography  233 Index  267
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“Disability Worlds is a remarkable book, and the world will be a better place for it. It is like nothing else in the disability studies canon. Faye Ginsburg and Rayna Rapp are already major figures in the field, standing for decades at the still-too-sparsely-trafficked crossroads of disability studies and anthropology, and this book will become a standard reference point.”
Les mer

Produktdetaljer

ISBN
9781478026181
Publisert
2024-04-30
Utgiver
Vendor
Duke University Press
Vekt
544 gr
Høyde
229 mm
Bredde
152 mm
Aldersnivå
P, 06
Språk
Product language
Engelsk
Format
Product format
Innbundet

Om bidragsyterne

Faye Ginsburg is Kriser Professor of Anthropology at New York University, Co-director of the Center for Disability Studies, and the author and editor of several books including Contested Lives: The Abortion Debate in an American Community.

Rayna Rapp is Professor Emerita of Anthropology at New York University and the author and editor of several books including Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America