"I met Chloë G. K. Atkins about fifteen years ago. What struck me about her at that time was that she was a leader: smart, courageous, and good humored. This book shows the same Chloë, but along with the context of the battle that she had to lead herself through. The word that comes screaming through every page of this story for me is humility—and how it is so desperately needed by physicians and other health workers who aspire to care for the sick. Every health care worker would be the better for reading Chloë's story."—Peter A. Singer, MD, MPH, FRCPC, FRSC, Professor of Medicine and Sun Life Financial Chair in Bioethics, University of Toronto

"In this brave account of her severe experiences of illness, medical neglect, and sometimes outright mistreatment, Chloë G. K. Atkins tells a story that needs to be heard by all clinicians. Doctors and nurses today are expected to treat all of their patients empathetically, whether they like them or not. Yet over and over again we see patients with difficult-to-diagnose conditions, or other predicaments that frustrate clinicians, treated disdainfully. Just as justice is most necessary not when people agree but when they are subject to conflicts, skillful empathy is most necessary when clinicians have complicated, negative emotional reactions to patients. The aim in such cases is for the clinician to empathize with the patient's dilemma, rather than to wait until she can neatly diagnose the patient in order to show empathy. Atkins shows how powerfully therapeutic it was for her when caregivers grasped her dilemmas of daily living, from her own perspective."—Jodi Halpern, MD, PhD, University of California, Berkeley, author of From Detached Concern to Empathy: Humanizing Medical Practice

"Chloë G. K. Atkins's gripping book My Imaginary Illness shows scholars and laypersons alike how humiliating and degrading it is for persons with disabilities to routinely face the rampant discrimination that plagues the medical community and society at large. Her compelling narrative reveals how she sought and found her dignity and humanity, all while fighting and recovering from an illness that the medical community could not understand given the limits of biomedical science. In this unique book, Atkins convincingly pokes holes in the biomedical community’s ethical shortcomings and its empirical limitations by employing her own rigorous political theory lens. Doctors, patients, and students of political theory will all profit greatly from reading Atkins's book."—Ruth O'Brien, The Graduate Center, The City University of New York

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"Chloë G. K. Atkins's book is a must-read for all student and graduate nurses, physicians, medical sociologists, social workers, and all else who work in health care. It dramatically illustrates the dangers of a totalizing medical discourse that denies patients any control over their disease. All health care workers must learn multiple discourses of illness and treatment and respect the embodied experience of patients, eschewing any approach that shames and blames the patient."—Patricia Benner, RN, coauthor of Educating Nurses: A Call for Radical Transformation

How Patients Think At age twenty-one, Chloë Atkins began suffering from a mysterious illness, the symptoms of which rapidly worsened. Paralyzed for months at a time, she frequently required intubation and life support. She eventually became quadriplegic, dependent both on a wheelchair and on health professionals who refused to believe there was anything physically wrong with her. When test after test returned inconclusive results, Atkins's doctors pronounced her symptoms psychosomatic. Atkins was told not only that she was going to die but also that this was her own fault; they concluded she was so emotionally deranged that she was willing her own death. My Imaginary Illness is the compelling story of Atkins's decades-long battle with a disease deemed imaginary, her frustration with a succession of doctors and diagnoses, her immersion in the world of psychotherapy, and her excruciating physical and emotional journey back to wellness. As both a political theorist and patient, Atkins provides a narrative critique of contemporary medicine and its problematic handling of uncertainty and of symptoms that are not easily diagnosed or known. She convincingly illustrates that medicine's belief in evidence-based practice does not mean that individual doctors are capable of objectivity, nor that the presence of biomedical ethics invokes ethical practices in hospitals and clinics. A foreword by Bonnie Blair O'Connor, who teaches medical students how to listen to patients, and a clinical commentary by Dr. Brian David Hodges, a professor of psychiatry, enrich the book's narrative with practical guidance for medical practitioners and patients alike.
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My Imaginary Illness is the compelling story of Atkins's decades-long battle with a disease deemed imaginary, her frustration with a succession of doctors and diagnoses and her excruciating physical and emotional journey back to wellness.
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Foreword by Bonnie Blair O'Connor Introduction1 Beginnings 2 The Original Crisis 3 Facing Uncertainty 4 Ontological Apprehensions 5 Diagnosis: Conversion Reaction 6 Credo 7 More Paralysis and More Psychological Remedies 8 A Pyrrhic Victory 9 Becoming a Pariah 10 Fire! Fire! 11 Love in the Midst of Ruin 12 Grasping at a Diagnosis, Hoping for a Cure 13 The Crisis Deepens 14 Contemplating Hemlock 15 Icarus 16 A Crisis, American Style 17 GravyClinical Commentary by Brian David Hodges, MD Bibliography About the Authors Index
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"I met Chloë G. K. Atkins about fifteen years ago. What struck me about her at that time was that she was a leader: smart, courageous, and good humored. This book shows the same Chloë, but along with the context of the battle that she had to lead herself through. The word that comes screaming through every page of this story for me is humility—and how it is so desperately needed by physicians and other health workers who aspire to care for the sick. Every health care worker would be the better for reading Chloë's story."—Peter A. Singer, MD, MPH, FRCPC, FRSC, Professor of Medicine and Sun Life Financial Chair in Bioethics, University of Toronto
Les mer
Chloë G. K. Atkins's book is a must-read for all student and graduate nurses, physicians, medical sociologists, social workers, and all else who work in health care. It dramatically illustrates the dangers of a totalizing medical discourse that denies patients any control over their disease. All health care workers must learn multiple discourses of illness and treatment and respect the embodied experience of patients, eschewing any approach that shames and blames the patient.
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A series edited by Suzanne Gordon and Sioban Nelson
The Culture and Politics of Health Care Work explores the historical, social, political, and economic forces that shape health care work and organizations. Focusing on the work of professional and nonprofessional staff as well as family caregivers, the series illuminates how the culture of health care work affects the structuring of health policy and practice. In an increasingly global marketplace, the series also seeks to better understand the international context within which all health systems function. Looking at health policy and the health professions from a variety of perspectives, including first-person accounts, the series is aimed at a wide audience including those who work in health care, academics, policy makers, and professional organizations, as well as general readers. Proposals and inquiries about the series should be sent to Suzanne Gordon (lsupport@comcast.net) or Sioban Nelson (dean.nursing@utoronto.ca) Series Editors Suzanne Gordon is an award-winning journalist whose work focuses on the health care work force, political culture, and women's issues. She is author of Life Support:Three Nurses on the Front Lines and Nursing against the Odds: How Health Care Cost Cutting, Media Stereotypes, and Medical Hubris Undermine Nurses and Patient Care, coauthor of Safety in Numbers:Nurse-to-Patient Ratios and the Future of Health Care and From Silence to Voice: What Nurses Know and Must Communicate to the Public, editor of When Chicken Soup Isn't Enough: Stories of Nurses Standing Up for Themselves, Their Patients, and Their Profession, and coeditor (with Sioban Nelson) of The Complexities of Care: Nursing Reconsidered. Sioban Nelson is Dean and Professor at the Lawrence S. Bloomberg Faculty of Nursing at the University of Toronto. Her books include, as coeditor, The Complexities of Care: Nursing Reconsidered and Notes on Nightingale: The Influence and Legacy of a Nursing Icon.
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Produktdetaljer

ISBN
9780801448874
Publisert
2010
Utgiver
Vendor
ILR Press
Vekt
907 gr
Høyde
229 mm
Bredde
152 mm
Dybde
24 mm
Aldersnivå
01, G, 01
Språk
Product language
Engelsk
Format
Product format
Innbundet

Forfatter
Foreword by
Afterword by

Om bidragsyterne

Chloë G. K. Atkins is Associate Professor at the University of Calgary. Bonnie Blair O’Connor is Assistant Director of Pediatric Residency at Hasbro Children's Hospital/Brown Medical School. Brian David Hodges, MD, is Professor of Psychiatry at the University of Toronto and Director of the Wilson Centre for Research in Education.